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XP Family Support Group Raffle (Read 76 times)
Apr 20th, 2010 at 10:15pm

singerkt   Offline
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Gender: female
Posts: 85
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My sister has a rare syndrome called Xeroderma Pigmentosum, XP for short. It is a rare genetic condition whereby a person's DNA lacks the ability to repair damage from ultraviolet light.� The disorder leads to skin cancer as early as childhood.� Unless sun exposure is minimized, XP victims are likely to die of malignant melanoma or squamous cell carcinoma.

My sister has already had 16 skin cancer surgeries for it and she is only 14. She cannot go out in the sun without a special hood to cover her. Talk about a hard life huh? There is no cure.

If you would like to support a good cause they are doing a raffle for a Harley-Davidson FXDF FAT BOB motorcycle or $15000 on July 10, 2010!� For just $20 a chance, we will give you 1 extra chance for every 5 tickets purchased.� To buy a ticket go to
http://www.xpfamilysupport.org/content.cfm?page_content=web_store_product_detail...

The ticket also makes you eligible to receive either a $250 Harley-Davidson gift certificate or a $150 gas card.

Thanks for your support! Smiley
 
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